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QUALITY OF LIFE OF CHILDREN IN NEED OF PALLIATIVE CARE, IN CONDITIONS OF INSTITUTIONS FOR ORPHANS AND CHILDREN LEFT WITHOUT PARENTAL CARE


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Abstract

The improvement of the quality of life (QL) of the child is the main goal of palliative care (PC). However, studies on the assessment of QL of the given contingent is not enough, especially for the children being in conditions of institutions for orphans and children left without parental care. There were studied the QL of 409 children, out of whom 113 being in need of PC were held at four centers for the promotion to the family education in Moscow. Pediatric Quality of Life Inventory - PedsQLтм4.0. The questionnaire survey was executed with the use of the Russian-language version of the international questionnaire for the assessment of QL «Pediatric Quality of Life Inventory - PedsQLtm4.0». There were established very low values of as the overall QL of children in need of palliative care, which are being in conditions of institutions for orphans and children left without parental care, as for all its compartments. The severe condition of the child that requires the provision of PC was established to decline the influence of gender, age, nosological, social factors on QL. There was detected only the impact of rehabilitation potential on the QL indices.


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