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THE FACTORS IMPACTING ATTITUDE OF MEDICAL COMMUNITY TO GENETIC RESEARCH AND MEDICAL CARE OF CHILDREN WITH INHERENT IMMUNITY ERRORS


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Abstract

The purpose of the study is to investigate factors influencing medical community's attitude to genetic research and medical care of children with inherent immunity errors and to develop recommendations for representatives of medical community (immunologists and allergists). Today, genetic research technologies and medical care provided on the basis of diagnostics are not considered as elements of health care management system in the Russian Federation. The factors (legal, ethical, organizational, etc.) affecting genetic research and medical care of patients with congenital immune errors are analyzed. The results of the expert survey carried out in sampling of allergists and immunologists of the Sverdlovsk Oblast are presented. Based on the results of survey, recommendations have been proposed for developing and implementing genetic research technologies and medical care. The conclusions are made concerning necessity of minimization of medical and social risks through introduction and regulatory consolidation of genetic research technologies and consulting technologies based on diagnosis of severe combined immunodeficiency; joining administrative and professional efforts in professional training in the field of genetic counseling, including other specialists in health care.


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